Wednesday, March 25, 2009

Midnight Plea

It's the middle of the night and I am not able to go back to sleep after being up for the past hour with a miserable little boy. I struggle writing this because everyday I come across someone who knows someone who has a child who faces life or death, and for Eli we are not faced with a life or death situation--just a daily battle with miserable eczema. These past few weeks of Spring have been an all out assualt on Eli's skin--he is covered in it--even his ears. The enzymes haven't managed it quite like they were a month ago. The guy who is working on this with Eli basically said that Eli gets it from both sides--internally and externally. Not only is Eli highly allergic to the very foods he needs right now--eggs and dairy, he is also highly sensitive to every chemical, pollen, fragrance, and whatever else is floating around in our environment. We allready know that when we take him out of his environment at home we can expect things to get worse for him. Our trips to Tennesse and Houston this year are evidence of this, but also even taking him to church takes a toll on him. Sundays are usually his worst days. I watch this little boy claw through his pajamas till he bleeds and am completely helpless. I can't even find something to make him comfortable. I can't rescue my son. It is a terrible feeling. It has taken a toll on all of us as well. You can't imagine what this kind of disease can do to your soul. I am beginning to understand the isolation that those lepers felt--and I don't even have the issues. But my struggles don't compare to Eli's. I keep hearing that he will grow out of it one day, but in the mean time, what do I do? Because I have no guaruantee he ever will . He is a visual of this broken world that we live in. And I think it will take His Saviour to restore him to the way he was intended. I am thankful for all we have learned in the process--how to take care of our bodies, nourishing them with healthy foods, being mindful of what goes into these "temples" we have been given. All these things have blessed us. But I still have a son who needs new skin, and who needs to be nourished from the foods he can't eat, who needs to run and play outside, who needs a full night's sleep, and good resting. Not even benadryl gives him that. I have prayed thousands of prayers for him and I know that the Lord has given him lots of reprieves--for that I am grateful. The only thing we feel led to do is to take him forward Sunday morning for prayers. We can't rescue him, but we know someone who can and so we are going to offer him up to the one who can heal all wounds. So, I ask for your prayers for Eli as well--that God would restore whatever is missing or broken in Eli. Yet, Even through all the itching and oozing and bleeding and very limited diet, he never complains about what he can eat and he still manages to make us laugh at any given moment-- we delight in those moments.
"Show the wonder of your great love, you who save by your right hand those who take refuge in you from their foes." Psalm 17:7

8 comments:

Melissa (aka Kitty) said...

I'll send you my cousin's email address if you want to email her about the eczema. Gabe is 7 and still has it really bad. He itches until he bleeds. It's all over him. She is a "talker" and would love to tell you about what they have done and do.

Kelly said...

Jenni, I am so sorry to hear how bad it still is. I was so hopeful for you with the enzyme diet. Eli will be in my prayers!

Grandmommy (aka BoPa,aka Lois) said...

My heart aches for all of you; my prayers are with you. I love you.

Anonymous said...

I am encouraged by your refusal to despair. God will bless your patience and persistent reliance upon his promises, even as the darkness of suffering is its most intense. The desires of your heart are strong and true - your Eli and your Lord. I will pray for you all.
My love,
Dad

Anonymous said...

Kevin and Jenni,

We have been praying for Eli since he was born and specifically for relief from the eczema since it began. It breaks our hearts to see him scratching until his skin bleeds. We will continue to pray for a complete healing in whatever manner God chooses to deliver it. Eli is such a sweet, precious little boy.

We love you all.
Granny Franny & Papa Bill

Anonymous said...

My heart goes out to Eli, and after having seen Matt go through this I hope your prayers will be answered. Matt's has gotten somewhat better with age. Hang in there. We love you guys.
Gerald & Marilyn

Granddolls' MiMi said...

Oh Jenni, my heart hurts for Eli and for all of you. It must be so very frightening and alarming. Surely there is state-of-the-art medical experts somewhere that could at least protect the infections and find some sort of relief for him while he is growing out of it. Just know we are praying constantly for him. We love you so much. Aunt Beth

Wes and Bonnie said...

Jenni, it breaks my heart to know you guys have to deal with that but man how you all handle it! I can't imagine how htat would be. I don't like runny noses and coughing that you can't do too much about and that doesn't even touch what you all are experiencing. I will keep you all in my prayers.